I'm currently on my work trip and will be gone for the next two days, so my anxiety is at an all-time high. Nico doesn't do well typically when I'm gone, so I have to do a lot of prepping in the days leading up to my trips. This includes filling out the "mommy away, … Continue reading The Most Deserving
Tag: advocacy
Another Adventure Awaits
I’ve been thinking a lot about caregiving recently. It’s something that I feel like I have been doing in one way or another for as long as I can remember, and it’s given me a great sense of purpose my whole life. In the simplest sense, I started early with caregiving. Growing up, I took … Continue reading Another Adventure Awaits
With Open Arms
I love taking Nico to the trampoline park. He finds so much joy in jumping. He always has. He got his first trampoline when he was 2 years old, shortly after his diagnosis, and he used that tramp every single day until he outgrew it. I learned early on in his autism diagnosis that he … Continue reading With Open Arms
Landslide
I’m sitting on a plane heading to Indianapolis for a family graduation and my boys are sound asleep. Could it be because we woke up at 530am, or possibly because I slipped a little dose of melatonin in their juice…can’t be sure (tongue and cheek moment), but I am calm for the first time since … Continue reading Landslide
Somewhere in the Middle
“One thing I always want to make sure people know about children and adults with autism is that they are tremendously empathetic and affectionate. They feel things very deeply. And although autism may present itself in ways that demonstrate disinterest or apathy, do not be fooled…autistic individuals see you, hear you, and feel you more than you will ever realize.”
Show Up
I traveled home recently for a significant family funeral. It was not the ideal setting to be able to reconnect with family and friends who I had not seen in years, but it was a true silver lining in the midst of such sadness. I traveled alone which was hard because I would’ve loved my … Continue reading Show Up
Pivot
This week I had a gut check. I was brought back to reality. I was told my son is not making gains academically and it has come time to consider a new educational path for him. I wasn’t shocked and knew it was coming, but what has become the most soul-sucking is the fact that … Continue reading Pivot
Marathon, not a Sprint
I am finding that my life has become a juggling act lately and a new ball is constantly being tossed into the mix without much warning. I suppose this is what you sign up for when you become a (special needs) parent and work full time. I know I am not unique in my circumstances … Continue reading Marathon, not a Sprint
It’s All Happening
We’re down by the coast for the 4th of July weekend. I am trying to fill our summers with at least a couple weekend trips and one big family vacation to ensure I am making memories with the boys and getting Nico out into new environments as much as possible. Now, this is no easy … Continue reading It’s All Happening
Choose To Be Humane
Nico has been having meltdowns and fits at school recently. We’re not sure what triggers them most times since we hear about them after the fact, but honestly, it could be for a hundred different reasons. He has a solid routine that his teacher team and my husband and I developed together months back, so … Continue reading Choose To Be Humane